It all started…
One evening in 2007. when Brady Jorgensen was 9 months old, his mother, Brandy, noticed his left eye twitching. Less than two weeks later, Brady was diagnosed with a malignant brain tumor. Neurosurgeons in Omaha removed 70 percent of the butterfly-shaped mass. Within ten weeks post surgery, 60 percent had grown back. Brady began an 18 month chemotherapy regimen. Brain MRIs were done every three months and for a while everything seemed stable.
In June 2010, Brady’s tumor started growing, which led to 13 months of chemotherapy. In July, 2013 tumor regrowth returned again, bringing more uncertainty to his family. In October 2014. when scans showed that the tumor had not diminished, Brady’s mom decided to seek a second opinion. She contacted pediatric cancer specialists at the University of Iowa. In February2015, Brady began a six-week course of radiotherapy receiving 28 treatments, Monday through Friday.
Brady’s tumor is categorized as a pilomyxoid astrocytoma. This rare type of tumor occurs often in the hypothalamus, the area of the brain responsible for the body’s key hormones. Pilobyxois astrocytoma also can affect the brain’s optic nerve. For Brady, this caused the initial eye twitching, which has since led to total vision less in his left eye and significant vision loss in his right eye.
Brady is in 7th grade at Wilson Middle School in Council Bluffs. He is in advanced math and enjoys Spanish. He is in the Chess Club, plays drum in the school band and is on the Academic Honor Roll